February 2024 Body Weight was 233 pounds

April 2024 Body Weight was 218 pounds

June 2024 Body Weight was 199 pounds

Sean set up for a CT scan in July.

Sean received a definitive diagnosis of Peripheral T-Cell Lymphoma, setting the stage for his treatment plan. Bone Marrow Biopsy and Lumbar Puncture.

In August Sean has his port implanted, a PET scan and a lymph node biopsy.

Sean started an intensive treatment regimen, including chemotherapy, to combat the progression of the disease. Cyclophosphamide, Hydroxydaunorubicin (doxorubicin), Vincristine, and Prednisone. (CHOP) was the treatment method used.

Sean will undergo more testing to prepare for his Autologous Stem Cell Transplantation (ASCT). January 22nd, 2025 he had his 2nd Bone Marrow Biopsy. 

Minor set back – 10% of his bone marrow still showed cancer – –  Sean had 3 days of ICE treatment to try and eradicate it. On January 29, 30 and 31 he recieved a chemotherapy called ICE (ifosfamide. carboplatin. etoposide.) It is a very powerful treatment. We will see with a follow up Bone Marrow Biopsy in February.

Sean had his 3rd Bone Marrow Biopsy on February 10th, 2025, it still showed 5% cancer in his bone marrow. As a result from the ICE treatment Sean received, he landed in Saint Mary’s emergency department on February 11th. Sean had a temperature of 102.7 and was immediately taken to the Mayo Clinic and spent 18 days inpatient as a result of an infection.

More chemotherapy was ordered and Sean decided to return home to have the treatment locally. He started on Romidepsin March 17th, 2025. The Mayo did the collection to be used in matching him with a donor.

Sean continued the Romidepsin treatment. 3 weeks on and 1 week off.

Sean returned to GOL house on June 14th. He had several appointments at the Mayo and learned that he was no longer eligible for the autologous stem cell transplant and was told he needed a donor. He had too many “frontline” treatments and the cancer is still in his bone marrow.

July was a month of seeing various doctors and different testing. The search started for donors, Sean was a little frustrated as he thought that process started in March of 2025. The doctors told him it could take upto 3 months to find a donor and a possibility of not matching with a donor at all.

On July 28th Sean learned that they had found several donor matches through the national and international donor registries. He was so happy, the Doctors said it was very rare to find multiple donors so quickly.

A new drug called Copiktra/duvelisib was Prescribed July 28th, 2025
Take 3 capsules (75 mg total) by mouth 2 (two) times a day.

This is an oral medication and hopefully will take the cancer out of my bone marrow.

On August 4th Sean was told of the donors timeline and was set for transplant day of September 11th, 2025, however, on August 13th, Sean was told the timeline changed slightly and transplant day would be September 18th, 2025.

On August 21st Sean found out the donor that has been selected, is a male, in his 20’s, with a  10/10 match and matching blood type, the donors location is international, however, not of european decent. We have no further information as of yet.

Chemotherapy contined.

Sean’s spleen has been enlarged for about 18 months that we know of. Largest size close to 23cm… In Jan 2025 it was 17.3cm, in June it was 15.4cm and 8.23.2025 it was at 12.2cm which is a “normal” size! Amen! They actually considered removing it at one point.

On August 13th, 2025, Sean’s schedule was updated to the following:
Evaluation Week 8/18-8/21/25
Pre-chemo Visits 9/9
Radiation Oncology 9/10
Central Line 9/11
Conditioning 9/12-9/16/25 (this is chemotherapy)
Rest 9/17
Day 0 9/18/25 (this is my new born on date)

On Day 0 Sean’s immune system will be rest as if he was a newborn baby.

Sean had several more tests and procdures including: chest x-rays, echocardiogram, ECG, chemotharapy, nutrition class, kidney function test, dental exam, pulmonary testing, transplant dr appt, PET scan, more chemotherapy.

On September 2nd Sean had his 5th bone marrow biopsy and is waiting on results.

Preliminary results show a small percentage of Lymphoma still remains in the bone marrow. Waiting to hear from the doctor.

September, 8th, 2025 – Transplant team visits. Transplant Workup Formal pre-transplant clearance and team review.

Sep 11, 2025 Transplant / Hospital Nurse comprehensive visit and Saint Marys hospital visit. Mayo export lists comprehensive visit and hospital visit RST MCH Saint Marys Campus. Possible line/procedure day per schedule.

Oct 1-10, 2025 Transplant / Hospital Daily/near-daily hospital outpatient visits, pulmonary, dermatology, neurology. Mayo export lists repeated hospital outpatient visits Oct 1-10. Early transplant recovery intensity.

Oct 11-21, 2025 Transplant / Hospital Hospital admission. Mayo export lists hospital visit RST MCH Methodist Campus Oct 11-21. Major post-transplant hospitalization.

Oct 25-29, 2025 Transplant / Hospital Hospital admission. Mayo export lists hospital visit RST MCH Methodist Campus Oct 25-29 and GI anesthesia event Oct 28. Second major post-transplant hospitalization.

Nov 2025 Recovery / Remission Frequent infusions, labs, APP visits, transplant monitoring. Mayo export lists many visits Nov 1-28 including infusion, outpatient visits, APPs, pharmacy, social work, nursing. Engraftment/recovery chapter.

Nov 17, 2025 Recovery / Remission Day +60: 31 rounds of chemotherapy, 2 rounds of TBI, multiple oral and IV medications. Sean’s Mission. Powerful milestone summary.

Nov 28, 2025 Recovery / Remission Bone marrow/procedure day. Known milestone: no morphologic/immunophenotypic lymphoma per prior report summary. Mayo export lists procedure/anesthesia, lab, infusion. Major remission evidence.

Dec 1-26, 2025 Recovery / Remission Frequent recovery monitoring, infusions, pulmonary, dermatology, social work, labs, radiology. Mayo export lists repeated transplant clinic, imaging, infusion, education, pulmonary and dermatology appointments. Day +60 to +100 recovery chapter.

Dec 24-25, 2025 Recovery / Remission Major evaluation period. Known milestone: PET/CT Deauville 1 complete response; bone density and pulmonary/radiology visits around same period. Mayo export lists many Dec 24 visits and Dec 25 patient message. First major victory / remission evidence chapter.

Jan 2026 Recovery / Remission Ongoing stabilization; dermatology, infusion, telemedicine, clinical communications. Mayo export lists Jan 7, Jan 21, Jan 23, Jan 26 events. Rebuilding life after transplant.

Jan 26, 2026 Recovery / Remission Major follow-up day. Mayo export lists Dr. Durani, pulmonary, nurse, infusion lab, anesthesia/procedure. Stabilization milestone.

Feb 9, 2026 Recovery / Remission Major follow-up/surveillance. Mayo export lists Dr. Durani, radiology, infusion lab, hospital visit. Ongoing remission surveillance.

Mar 18, 2026 Recovery / Remission Comprehensive review. Mayo export lists infectious disease nurse, Dr. Durani, transplant nursing, radiology. Long-term recovery chapter.

Jun 2, 2026 Recovery / Remission Follow-up with labs/nursing/Dr. Durani. Mayo export lists lab, nurse only, office visit. Ongoing monitoring. Add visit note findings.

Jun 9, 2026 Recovery / Remission Dr. Durani visit and dental comprehensive visit. Mayo export lists Dr. Durani and dental visit. Latest verified Mayo review in export. Add visit note and dental/GVHD findings.

Jun 17-22, 2026 Needs Proof Upcoming appointments listed in portal: video visit, labs, allergy consult, pharmacy, nurse, echo, Dr. Durani, consultation. Mayo export upcoming visits. Forward-looking medical follow-up. After completion, update as past events and add results.